Iron Disorders - Hemochromatosis

About this group

A place for those with Iron overload disorders can share daily experiences, successes and challenges.

Information

Group Type Public, Open Access
Tags All Journey Phases; Blood Disorder
Affiliated Organization Iron Disorders - Hemochromatosis
Organization Website

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SFerguson

SFerguson

Hi, I'm SFerguson

SFerguson
Amanda Waanbah

Amanda Waanbah

Hi, I'm Amanda Waanbah

Amanda Waanbah
Sonya

Sonya

Hi, I'm Sonya

Sonya
Brow3665

Brow3665

Hi, I'm Brow3665

Brow3665
Kathy

Kathy

Hi, I'm Kathy

Kathy
deannabanana

deannabanana

Hi, I'm deannabanana

deannabanan...
Carlene

Carlene

Hi, I'm Carlene

Carlene
Jenhen

Jenhen

Hi, I'm Jenhen

Jenhen
Loren R K.

Loren R K.

Hi, I'm Loren R K.

Loren R K.

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I should've added I am only 36 years old and female. All these problems seem to be a million times worse since having my children at 24 and 35 years old. The reason we found the cyst in my head was...

Tue Nov 10, 2020 ·

no iron in my body

Brow3665

Hi, I'm Brow3665

Brow3665

Oh! I can relate to this. Last October, 2019, I started craving ice super, super bad. I got lab work at my PCP and my ferritin level came back at "<1". They thought it was an error so they ran it a...

Sun Oct 4, 2020 · 3

Amyloid

Bob Bowen

Hi, I'm Bob Bowen

Bob Bowen

Sun Aug 23, 2015 ·

Hemochromatosis

Richard E F.

Hi, I'm Richard E F.

Richard E F.

I am glad to hear your husband is getting treatment, it sounds like he is on the right track! I was lucky in that mine was caught before the age of 40 and I don't appear to have heart damage. Our...

Wed Apr 1, 2015 · 1

theraputic phlebotomy

Richard E F.

Hi, I'm Richard E F.

Richard E F.

I was diagnosed with HH over a year ago, my ferritin level was over 700 then. With monthly phlebotomy my ferritin is now in the normal range, saturation is nearly to ideal range. I am feeling muc...

Mon Mar 16, 2015 · 2

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