Iron Disorders - Hemochromatosis

About this group

A place for those with Iron overload disorders can share daily experiences, successes and challenges.

Information

Group Type Public, Open Access
Tags All Journey Phases; Blood Disorder
Affiliated Organization Iron Disorders - Hemochromatosis
Organization Website

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TonyaB

TonyaB

Hi, I'm TonyaB

TonyaB
GpDavid

GpDavid

Hi, I'm GpDavid

GpDavid
SarahITP

SarahITP

Hi, I'm SarahITP

SarahITP
Sherrill

Sherrill

Hi, I'm Sherrill

Sherrill
Jenfromco

Jenfromco

Hi, I'm Jenfromco

Jenfromco
Ginger Ewing

Ginger Ewing

Hi, I'm Ginger Ewing

Ginger Ewing
Kthurman

Kthurman

Hi, I'm Kthurman

Kthurman
Yamaha

Yamaha

Hi, I'm Yamaha

Yamaha
SFerguson

SFerguson

Hi, I'm SFerguson

SFerguson

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Hopeless and frustrated...

SarahITP

Hi, I'm SarahITP

SarahITP

I went to the Mayo Clinic for a second opinion and felt it was worth it. Some advice for you that I think made it easier for me. 1) have an Illness resume- a. Each illness in chronological ...

Mon Nov 15, 2021 · 5

no iron in my body

TonyaB

Hi, I'm TonyaB

TonyaB

I just had my first Infed infusion yesterday, hoping to feel better soon. Was told I only needed this one at 950 mg. Will have bloodwork again in May to see where levels are. Sure hope my ice crav...

Tue Feb 8, 2022 · 4

Amyloid

Bob Bowen

Hi, I'm Bob Bowen

Bob Bowen

Sun Aug 23, 2015 ·

Hemochromatosis

Richard E F.

Hi, I'm Richard E F.

Richard E F.

I am glad to hear your husband is getting treatment, it sounds like he is on the right track! I was lucky in that mine was caught before the age of 40 and I don't appear to have heart damage. Our...

Wed Apr 1, 2015 · 1

theraputic phlebotomy

Richard E F.

Hi, I'm Richard E F.

Richard E F.

I was diagnosed with HH over a year ago, my ferritin level was over 700 then. With monthly phlebotomy my ferritin is now in the normal range, saturation is nearly to ideal range. I am feeling muc...

Mon Mar 16, 2015 · 2

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