Iron Disorders - Hemochromatosis

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A place for those with Iron overload disorders can share daily experiences, successes and challenges.

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Group Type Public, Open Access
Tags All Journey Phases; Blood Disorder
Affiliated Organization Iron Disorders - Hemochromatosis
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Jenfromco

Jenfromco

Hi, I'm Jenfromco

Jenfromco
Ginger Ewing

Ginger Ewing

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Ginger Ewing
Kthurman

Kthurman

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Kthurman
Yamaha

Yamaha

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Yamaha
SFerguson

SFerguson

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SFerguson
Amanda Waanbah

Amanda Waanbah

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Amanda Waanbah
Sonya

Sonya

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Sonya
Brow3665

Brow3665

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Brow3665
Kathy

Kathy

Hi, I'm Kathy

Kathy

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I should've added I am only 36 years old and female. All these problems seem to be a million times worse since having my children at 24 and 35 years old. The reason we found the cyst in my head was...

Tue Nov 10, 2020 · 1

no iron in my body

Brow3665

Hi, I'm Brow3665

Brow3665

Oh! I can relate to this. Last October, 2019, I started craving ice super, super bad. I got lab work at my PCP and my ferritin level came back at "<1". They thought it was an error so they ran it a...

Sun Oct 4, 2020 · 3

Amyloid

Bob Bowen

Hi, I'm Bob Bowen

Bob Bowen

Sun Aug 23, 2015 ·

Hemochromatosis

Richard E F.

Hi, I'm Richard E F.

Richard E F.

I am glad to hear your husband is getting treatment, it sounds like he is on the right track! I was lucky in that mine was caught before the age of 40 and I don't appear to have heart damage. Our...

Wed Apr 1, 2015 · 1

theraputic phlebotomy

Richard E F.

Hi, I'm Richard E F.

Richard E F.

I was diagnosed with HH over a year ago, my ferritin level was over 700 then. With monthly phlebotomy my ferritin is now in the normal range, saturation is nearly to ideal range. I am feeling muc...

Mon Mar 16, 2015 · 2

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