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About this group

A place for those with Iron overload disorders can share daily experiences, successes and challenges.


  • Public, Open Access
  • All Journey Phases; Blood Disorder
  • Iron Disorders - Hemochromatosis

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Hi, I'm SarahITP
I went to the Mayo Clinic for a second opinion and felt it was worth it. Some advice for you that I think made it easier for me. 1) have an Illness resume- a. Each illness in chronological ...
  • Mon Nov 15, 2021 · Like5
Hi, I'm TonyaB
I just had my first Infed infusion yesterday, hoping to feel better soon. Was told I only needed this one at 950 mg. Will have bloodwork again in May to see where levels are. Sure hope my ice crav...
  • Tue Feb 8, 2022 · Like4
Hi, I'm Bob Bowen
Bob Bowen
  • Sun Aug 23, 2015 ·
Hi, I'm Richard E F.
I am glad to hear your husband is getting treatment, it sounds like he is on the right track! I was lucky in that mine was caught before the age of 40 and I don't appear to have heart damage. Our...
  • Wed Apr 1, 2015 · Like1
Hi, I'm Richard E F.
I was diagnosed with HH over a year ago, my ferritin level was over 700 then. With monthly phlebotomy my ferritin is now in the normal range, saturation is nearly to ideal range. I am feeling muc...
  • Mon Mar 16, 2015 · Like2
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