Iron Disorders - Hemochromatosis

About this group

A place for those with Iron overload disorders can share daily experiences, successes and challenges.

Information

Group Type Public, Open Access
Tags All Journey Phases; Blood Disorder
Affiliated Organization Iron Disorders - Hemochromatosis
Organization Website

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Carlene

Carlene

Hi, I'm Carlene

Carlene
Jenhen

Jenhen

Hi, I'm Jenhen

Jenhen
Loren R K.

Loren R K.

Hi, I'm Loren R K.

Loren R K.
LacyB

LacyB

Hi, I'm LacyB

LacyB
James A M.

James A M.

Hi, I'm James A M.

James A M.
DALE C B.

DALE C B.

Hi, I'm DALE C B.

DALE C B.

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no iron in my body

Jenhen

Hi, I'm Jenhen

Jenhen

my personal experience is that you should have been feeling better pub that time. if this happens in future I would tell Dr and ask for bloodwork. when I was first diagnosed. I don't recall how lo...

Sun Jun 4, 2017 · 2

Amyloid

Bob Bowen

Hi, I'm Bob Bowen

Bob Bowen

Sun Aug 23, 2015 ·

Hemochromatosis

Richard E F.

Hi, I'm Richard E F.

Richard E F.

I am glad to hear your husband is getting treatment, it sounds like he is on the right track! I was lucky in that mine was caught before the age of 40 and I don't appear to have heart damage. Our...

Wed Apr 1, 2015 · 1

theraputic phlebotomy

Richard E F.

Hi, I'm Richard E F.

Richard E F.

I was diagnosed with HH over a year ago, my ferritin level was over 700 then. With monthly phlebotomy my ferritin is now in the normal range, saturation is nearly to ideal range. I am feeling muc...

Mon Mar 16, 2015 · 2

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