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2018 Highly Aggressive Breast Cancer...2021 Leukemia....Forever

Created February 16th, 2022, filed in All Cancer Types

Hello,
I am a 42-year-old, single female who has been battling cancer since 2018. I was diagnosed with High Aggressive Ductal Carcinoma in August of 2018. I went through 11 months of infusion chemotherapy, a double mastectomy, and a BRCA-1 diagnosis.
Today, I am battling CML which has been worse than the treatments for breast cancer. I am exhausted, I’m lost in my mind and at the same time, I am a woman with an extreme drive for her career and future. I was meant to make the world a better place. However, I am in so much pain and scrambled in. my brain from chemo and this nad that, I don’t know what day of the week it is.
My oncologist won’t relieve the pain suffering in my back, regardless that the CML has infiltrated my non-existent discs.

What does a human being have to do to get some relief from the torture of 4v years of hell? I believe I have earned my badge to get whatever the f*** I ask for without question. I am suffering and it’s making me crazy, almost suicidal at times.

I'm KYLE M V., and I'm a survivor of Stage 2b Pancreatic Cancer

You have earned that right! Please try to stay positive and consider changing to an oncologist that is empathic to your pain and concerns.

  • Sat Feb 19, 2022
Dan
Dan
Hi, I'm Dan
Dan

My thoughts are with you. I hope you find peace and relief from your suffering and pain.

  • Tue May 3, 2022
Hi, I'm KEVIN E M.

Have your doctors discussed the possibility of a stem cell transplant for CML? I was diagnosed with CMML and had a stem cell transplant March 2021. It was tough and the recovery process after the transplant is slow, but now a year later I’m feeling better and it put the CMML in remission.

  • Thu May 12, 2022
kj
kj
Hi, I'm kj
kj

Hoping you are able to get accupuncture and more for side effects. there is not help for side effects. it is a very humiliating process.

I asked for help at three cancer centers. I was met with very defensive Palliative care providers.

I know people who end up going to Seattle to get care so treatment can be supported at one cancer center.

A social worker and more laxatives does not replace the phisological need for splinting while having a b.m.

I finally got referred to pelvic floor p.t. soooooo helpful! I have needed to “splint” to have a bowl movement. On my way to my 4th pelvic p.t. soon.

I am hopeful you will still keep looking for help.

I am hopeful our system of supporting our providers will change in the future.

I have met very few oncology doctors. But only a couple were empowered enough to hear what I am saying. Laxatives exasterbate my problems even before Cancer treatment.

I could go on about the level of anger and distress our Provider and team members convey.

it is too much for them obviously.

And yes, I am sure these responses are monitored by Compass. But I feel like financial concerns and distress shown by team members even spills over into how all of our private information is shared in the hallways and the waiting areas. Scare tactics are heavy handed.

hoping there is support for the staff to take time to go behind a closed door when negotiating $ for life saving treatments and clerical errors in billing.

My insurance kicked into COBRA 4 times because my work did not document my employment status correctly.

Hoping u find peace a little each day.

don’t pray for the sick at this point.

pray for healthcare for all and for providers and team members . It is clear they do not have the autonomy to provide simple directions for side effects management.

  • Mon Jun 27, 2022
kj
kj
Hi, I'm kj
kj

@thecancerpatient on Instagram

@ohyouresotough

@nogrieftourists

reach out to communities online and go toburgent care to get a referral for specialist for back?

it is a long process to find the right help!

  • Mon Jun 27, 2022