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Stage 2 Breast Cancer and Capecitabine

Hi, I'm Farrah M R.

I was diagnosed in January 2019 with Stage 2 mixed ductal and lobular metastatic breast cancer that moved to my lymph nodes. I underwent the standard AC chemo and on to the Taxol followed by a bilateral mastectomy, hysterectomy and radiation. I am now going to be starting Capecitabine and haven’t really found any discussions in this chemo. Anyone ever taken this one that could provide some insight on their experiences with it?

  • Post #1
  • Sun Dec 15, 2019
Hi, I'm Rhlynrd

In March 2018 I was diagnosed with aggressive stage 2 IDC. I had bilateral mastectomies then I took Capecitabine after AC chemo. The Capecitabine wasn’t too bad for the first three cycles. After that my dosage and days had to be reduced due to significant abdominal cramps and diarrhea. I also experienced hand foot syndrome In iwhich my feet blistered and peeled after several days of an intense burning sensation. Once my dosage was adjusted things were better and I was able to continue for the 6 months.

  • Post #2
  • Sat Dec 21, 2019
Hi, I'm Reba M B.

I have been on capecitabine for over a year. At first I was on 3000 mg. per day. After a few months, I had terrible feet issues and some slits in my hands. My Dr. reduced the amount to 2000 mg. per day. I did better but have had foot issues. I found a urea 40 cream on line which was a big help, but last month, I had it and went to my foot Dr. He told me about Amlactin Ultra Smoothing cream. In just a few days, the slits in my feet healed and my feet began to feel much better. I use it morning and night. I have been using L’Occtitane Dry Skin Hand cream for my hands and it has been very helpful. I have a large tube by my bed and use it each night. During the day, I apply it several times and carry a small tube of it in my purse. I always use rubber gloves when washing dishes.
I asked my Dr. for a form for a handicap parking card and use it only when my feet are really hurting. The drug has worked very well for me, so I just deal with the h&f syndrome.

  • Post #3
  • Sat Dec 28, 2019
Hi, I'm BECKY G.

Hi I’m Becky was initially diagnosed with breast cancer October 96, metasastized in 2001. I have been on xeloda 4 yrs. 500mg 2 in am and 3 pm with 1 week on and 1 off. No hand and foot issues, but stomach issues with occasional vomiting. If you are having issues, your oncologist can easily change the doseage or the weeks on and off. Keep up the fight! ps. capacibine is also the name for xeloda

  • Post #4
  • Mon Dec 30, 2019

Hi I’m Catherine, was diagnosed November 2019 with stage two hormonal breast cancer, start chemotherapy on Monday, any tips would be helpful ladies, I’m expecting the worst, so hopefully I’ll get a wee surprise. I hate the fact that so many people are going through this but it’s good to know I’m not alone

  • Post #5
  • Fri Jan 3, 2020
I'm Jdy, and I'm a survivor of Stage 4 Breast Cancer

Use plastic utensils, try not to be around kids a lot germs

  • Post #6
  • Sun Jan 5, 2020
Hi, I'm Wendy S.

I was diagnosed in January 2019 triple negative metastatic stage 4. I have been on Xeloda. Started on 3600 mg, 1 week on 1 week off. Was lowered to 3000 mg recently. Fatigue and just dryness overall we’re getting intolerable. Much better now and have always used “bag balm” for hands and feet. IT WORKS!! I even hand problems with my finger print on my iPhone. Gloves are a MUST in the kitchen and get REST. My biggest hurdle is saying NO. Take good care! My go bless everyone.

  • Post #7
  • Sun Jan 5, 2020
Hi, I'm Wendy S.

And that would be GOD bless everyone

  • Post #8
  • Sun Jan 5, 2020
Hi, I'm DIANE K H.

Triple negative post….just wondering if you had mastectomy, chemo, radiation or genomic testing?

  • Post #9
  • Mon Jan 6, 2020
Hi, I'm Wendy S.

Hello again! I had a double mastectomy in 2009 and chemo. Found another lump in 2019. It was original diagnosis her 2 positive. When PET Scanned found some in liver. The liver biopsy came back Triple Negative. I was told RARE , but happens. Just last week had another scan and ‘NED’… no evidence of disease….

  • Post #10
  • Sun Jan 12, 2020

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