Polycythemia Vera and Secondary Polycythemia
I don’t see any resources for Polycythemia. I have my first appointment scheduled for Feb 18th. I was able to find a lot of information on Polycythemia Vera, but not a lot on secondary. Does anyone have any information and/or has anyone here been through either of these. Looking for support. Many thanks in advance.
Thanks for your reply. I am wondering how long it takes (approx) for the doctors to find the cause and then how long until you start feeling better. I am tired all the time and want my life back. Although I am not sure this is the cause. Looking for answers. Perhaps a bit impatient.
I have polycythemia vera. I was diagnosed in June of 2018. My phelbotomies seem to really help most of my symptoms. As far a cause they really don’t know how it happens, they are guessing mine is due to a severe bout with the flu, because after I had the flu I had all kind of issues, was like it pin pointed back to that. I have jack 2 so who knows how long I have had that. Jak 2 is a aqquired gene mutation, I wasn’t born with it but developed it, possibly from the flu.