I was diagnosed with choroidal ocular melanoma 09/2013 and had brachytherapy (radiation) in Iowa City 10/2013. The tumor has been classified as inactive (dead)for several years. Still get liver ultrasounds & labs every 6 months. Also followed by dermatologist, gynecologist, & Iowa City specialist yearly and have annual mammograms. See local Retinal specialist every 4 weeks for injections to combat radiation retinopathy.
I was diagnosed with a choroid always ocular melanoma in 8/2018. I had brachytherapy (radiation) with Dr Aaberg in Grand Rapids in 11/2018. Castle test results (biopsy) showed it to be class II, prime negative. Follow up shows the melanoma to have shrunk and no damage in the eye. I have had MRI of the liver and CT scan of the lungs twice. No sign of cancer activity. I will continue the MRI and CT scans every 6 months.
Thanks everyone. I’m also Class Two, Prame negative. Dr. Chandana is my medical Oncologist and is doing MRIs and ct scans every 4 months. So far so good. Dr. Aaberg is my ocular oncologist—because of the enucleation, i only need to see him once per year.
I was diagnosed with choroidal ocular melanoma 05/2016 and had brachytherapy with Dr. Wilson in Memphis. The melanoma has shrunk and I have had only a small change in contact strength. I now have CT scans and chest x-rays every six months. What I have been told is unrelated is a diagnosis of prostate cancer for which I had proton radiation. To date that too has been clear.
I had ocular melanoma about 10 years ago. I had the proton beam at UCDavis near Sacramento. It killed the cancer but did leave scar tissue on my center vision. I was cancer free until late in 2017 when the cancer came back in my breast, liver, and lungs. I was started on immunotherapy with Keytruda to start, then changed to the high dosage of Opdivo and Protonix. They seemed to get it under control and I was changed to the “maintenance” dosage of just Opdivo. The problem I had with that was it was totally draining my strength. I lost over 40 lbs. my balance was terrible, I was so weak that I could not step up onto a curb without something to hold on to, but it did get the cancer under control. I was taken off the treatment in Apr. of 2019 and have gained a lot of my strength and balance back. The cancer has been mostly kept at bay. I did get a spot on my upper arm that was taken care of with radiation at the 1st of the year. I now have a few spots left that are just sitting there doing nothing and my Oncologist is monitoring it every 3 months with PET scans.