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multiple myeloma

Hi, I'm Yakub S D.

I have had multiple myeloma since Nov 2017 and am now on revlimid 15 mg. Lately have been feeling very very tired – sometimes I have no strength to get out of bed. Anybody feel that way?

  • Post #1
  • Mon Apr 27, 2020
Hi, I'm DARLENE A S.

I was on revlimid for about 2 years and yes, it made me very tired. I’ve been on a couple different oral cancer treatments and found the oral drugs seem to affect my fatigue level more than the infusion. I’ve just learned that at least trying to do some things and even 5 minutes of exercise at a time does help. And, I’ve become very good at learning to take a nap when I need to. You should talk to your doctor about this. Be totally honest. There may be some solution that can be help you.

  • Post #2
  • Wed Apr 29, 2020
Hi, I'm DARLENE A S.

And, I will add, I’ve was originally diagnosed with multiple myeloma in 2006 and recently celebrated 14 years as a survivor. There are a several drugs that have been approved for treatment so when one quits working, somethings else out there may help. There is hope.

  • Post #3
  • Wed Apr 29, 2020
Hi, I'm Norma C.

I was diagnosed with multiple myeloma in August 2019 about 3 days before my birthday. I started taking revlimid 15mg right after the 1st cycle and so far I haven’t felt any extra tiredness or pain that is not caused by my diabetes, neuropathy and 2 heart conditions. Actually, this is the best I’ve felt in the past 10 years. I really and truly believe in natural supplements which I’ve been taking since feb 2019, but 1st, I did a liver cleansing. I’m doing this under the supervision of a naturalist. Some chiropractors are also naturalists. I recommend mine, Dr Fite, in Arlington, she is awesome. I also pray a lot and have a positive attitude. Hope this helps.

  • Post #4
  • Thu Apr 30, 2020
Hi, I'm Lynnett T.

How to deal with lymphodema

  • Post #5
  • Thu Apr 30, 2020
Bud
Bud
Hi, I'm Bud
Bud

I was diagnosed with multiple myeloma in jan. 2012. I did infusion for about 5 months and then wasoffered the chance to go on Revlimid (10 mg). So going near 8 years and numbers good. I do have energy drags and tiredness but they are not overwhelming. maybe 15 mg is too strong and check to see if you can drop down to 10MG.

  • Post #6
  • Thu May 7, 2020
Hi, I'm ROBERT B.

Have any of you had a stem cell transplant for multiple myeloma?

  • Post #7
  • Fri May 8, 2020
Hi, I'm Dennis M M.

I have had multiple myeloma since 2006. 3 stem cell transplants at Northwestern…2009, 2010, 2016 and enough cell on ice for 2 more if required.Over years I have any number of chemo infusions and oral drugs. Just had a pace maker put in 4 weeks ago No pain and generally experience fatigue and some tiredness. I am presently on Darzalex and and oral. Any questions, I could give you a call. Mostlly I can most anything. I am 75

  • Post #8
  • Fri May 8, 2020
Hi, I'm Susan E R.

I had a stem cell transplant on March 13th. My experience was much better than I expected as far as side effects from the conditioning chemo, etc. At this point, my labs (blood and urine) show that I am in remission. I am starting to have more energy, also.

  • Post #9
  • Sat May 9, 2020
Hi, I'm LorraineR

Happy Mother’s Day to all mothers and keep up the good fight.

  • Post #10
  • Sat May 9, 2020

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