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Monoclonal gramapathy of undetermined significance

Hi, I'm Ruth B H.

I have a diagnosis of Monoclonal Gamopathy of undetermined significance. Have to be re-checked every 6 months. Does anyone in this group have this diagnosis?

  • Post #1
  • Sat Mar 28, 2015
Hi, I'm Camille B.

I was diagnosed with MGUS in 2001-2002 period.

  • Post #2
  • Mon Mar 30, 2015
Hi, I'm Mashy

I was diagnosed with MGUS last week. I have a high IGM level with no other symptoms. My bone marrow biopsy was inconclusive for anything else.

  • Post #3
  • Tue Mar 31, 2015
Hi, I'm Mary L S.

I was diagnosed with MGUS in 1990. Blood work was ordered by my ob-gyn. My oncologist initially told me that this could just be an abnormality, and not develop into anything. Just for my information, she gave me two booklets on what to look for, and followed me every six months until
2007. When she left practice, I moved on to another oncologist who followed me yearly until 2011. She then said I could get the blood work done by my primary care, and if something came, I could return for evaluation. Nothing ever came up with the MGUS after 24 years of follow up.

  • Post #4
  • Sat Apr 4, 2015
Hi, I'm Ruth B H.

Originally I was diagnosed by a different doctor, different hospital. The first diagnosis was a bad one. I changed to another doctor, great hospital!. Now have a correct diagnosis of MGUS and a better outlook on life. Doctor said this usually causes no problems and every 6 months I will be rechecked. He said this is created by a" M" plasma white blood cell. I sure feel better about this diagnosis. Please believe in HOPE! If you want a second diagnosis, go for it! It’s your life!

  • Post #5
  • Sat Apr 4, 2015
Hi, I'm Marsha S D.

I was diagnoised with MGUS in 2012..my IGA is now 964 up from 540 last year….originally I had bone marrow biopsy and all the bloodwork and 24 hour urine just to eliminate MM..now doctor wants to see me every 6 months to monitor

  • Post #6
  • Fri Apr 10, 2015
Hi, I'm Yolanda C H.

I was diagnosed with MGUS in 2001. Have gone from 6 months rechecks to yearly rechecks. We are in this together!

  • Post #7
  • Sat Apr 11, 2015
Hi, I'm destindon.

Several years ago my GP noticed something in my blood work and referred me to a Kidney Specialist (nephrologist). There were abnormal proteins in my blood so I was then referred to a Hematology/Oncology doctor. There I was told I had a higher than normal level of a protein called M protein. That I was somewhere between MGUS and Smoldering Myeloma. I have been going back to both the Kidney Specialist and Oncologist every 6 months and have had a number of tests. My condition appears to be holding steady so my last evaluation put me at MGUS.

  • Post #8
  • Sat Apr 11, 2015
Hi, I'm Ruth B H.

My original diagnosis was multiple myeloma because of blood work on the Kappa Light Chain number. Our family was very upset, as was I. I had not had a bone marrow biopsy with them. My husband’s urologist, who had been treating him for bladder cancer, suggested I go to an otologist at his hospital for a second opinion. Glad I did that. A lot of blood work, followed by a complete body scan, and the 24 hr. urinalysis was done. The results showed Kappa Light chain monoclonal gammopathy of undetermined significance. Dr. said this has a relatively low risk of progression to multiple myeloma. I am almost 76 and he said I might have a problem with that in 20 or so years from now. For me, this is great news! I feel like a million dollars now and am able to not even think about the M.G.U.S. Also, my husband has been in remission for a year now. He is 80.

  • Post #9
  • Sat Apr 11, 2015
Hi, I'm destindon.

If there is anyone on this blog that has been diagnosed withMGUS and it has advanced from that to the steps towards Multiple Myloma please share your experience. Thanks!

  • Post #10
  • Sat Apr 11, 2015

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