I was nervous too, and wondered if I would start feeling sick during treatment sessions. I did NOT and I did not notice anyone else being sick either! I found the team of people who worked with me as well as the other patients in the treatment room made the journey pleasant. It was interesting to learn the stories of others. I believe it was the 3rd or 4th day after first treatment that I started having blisters around the inside of my lips. It wasn’t very pleasant, but in retrospect, it did not last all that long. I can’t say how much the kindness and caring of the practitioners helped. I had intestinal discomforts and lost my taste for many foods for awhile. Just be kind to yourself. I determined that I was going to keep my life as normal as possible during treatment and I felt well enough to do that most days. I’m sure you have been given tons of resource materials. I did not look at them too much because I was concerned that I would start imagining things to be worse than they actually were. Just before my surgery I found myself extremely nervous so did a walk-in appt with one of the free counselor’s in the Cancer clinic at Salem Hospital. It was well worth my time. Everywhere I turned there was a compassionate helper and the majority of the doctors/PAs/nurses involved in my treatment are also cancer survivors. You can get through this!! I’m on the other side now and in the Survivorship stage. I did not realize that this journey, even if given an “all clear” is a long one. Various appointments for bloodwork, checkups , etc. will continue for a long time to come. This had not occurred to me, but it is comforting to have my team still checking me over! In my prayers!
Before each of my infusions I was given Zofran, an anti nausea med. My only problem was when the first chemo. med was started for my first infusion it gave me an instant hot flash. I told the nurse about it and she lowered the rate of flow. I never had any other issues that way so bet she made a note in my chart. I must have had a “nervous” bladder that first day too as it seems I used the bathroom at least 5 times and that too got better but at least one trip across the room pushing my IV pole was the norm.
I wish I saw this blog before my first treatment, it is a great way to share our experiences. I have just completed my round 2 of chemo. Before my first treatment, I kept telling myself, “I don’t see anyone in the room crying.” I was also imagining that once they hooked up the port I was going to feel something instantly, which did not happen. I also kept telling myself there are millions of survivors because of the treatments.
Days later you may feel the side effects shared above, don’t fight the fatigue rest up! Second round was much easier because the emotion of fear was gone. I too, have to go the the bathroom at least 3x during chemo ; )You got this!
My husband is starting his chemo in 1 week. We are both very nervous. He also has dementia and short term memory issues, so it is hardly worth having him read about side effects and educational issues since he won’t remember. As the caregiver, there is only a limited amount of education I can take in as I balance his moods, meds, meals, blood sugar testing and his schedule of appointments. About a month ago we went to the Cancer Institute to meet the oncologist. I found it a depressing site seeing people with head scarves on and in wheel chairs. Then I realized that those are the survivors. Quite a road ahead as I watch my husband’s weight and appetite get smaller and smaller. He has trouble climbing stairs so a bed has been set up downstairs for him until we can get grab bars and an extra bannister installed. Friends and family have been a godsend as well as food donations. While I agree with keeping upbeat, I just wish he felt better so he could have a fighting chance at this. No question. CANCER SUCKS.
Oh yes I miss the days when you dialed a number and reached a human being instead of menu after menu of lists. To begin with, can’t they have different phone numbers for adults and pediatrics and faster ways of reaching what ends up being, a voice mail to leave a message?
keep positive, you will feel good, the main point is to use the week/s between one chemo infusion and the next one to eat good, sleep good, zofran is a good medicine for nausea, and ativan is good to sleep well, do some small excersize daily like walking etc. make sure to come to your next treatment stronger than before, keep yourself positive, it will help you a lot talorate the treatments, don’t give, i’m talking from my own expirience, dont give up, god is here to help you.