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Breast MRI

Hi, I'm Erin D E.

I had a double mastectomy 2 years ago and I recently had a Breast MRI to rule out a lump but what they did find is parenchymal enhancement which consist of breast tissue which I do not have anymore. Should I be concerned or is this normal. just want to know if anyone has had this as well.

  • Post #1
  • Tue Dec 3, 2019
Hi, I'm Cynthia M.

I was just told last week by my oncologist, you never ever get rid of breast tissue. Physically impossible. I was concerned as a friend who had my same diagnosis, recurred in her breast 14 years later. I’m Stage 11A, NTO, double mastectomies and 4 rounds of Taxotere and Cytoxin eleven months ago. On Arimidex and Gabapentin. But my concern is still breast tissue that still exists.

  • Post #2
  • Sun Dec 29, 2019
Hi, I'm CYNTHIA S.

Hi Cynthia, Your concerns are reasonable. They are. It’s a shock to hear the C word when it’s you they’re saying it to. But know we all take each day at a time. Please do not worry and worry that cancer will come back. Cross that bridge IF you come to it. Stay vigilant in testing and doctor’s advice and most of all—-enjoy your life. Each day is a gift. Do something good for yourself every day and try to be at peace. Cindy

  • Post #3
  • Sat Jan 4, 2020
Hi, I'm Cynthia B.

I didn’t ask or say this conversation.
Cynthia

  • Post #4
  • Sat Jan 11, 2020
Just be careful not to put your whole trust into your “care management team.” They are in a relationship with the insurance industry which is more important to them than your care. For instance, ask them to discuss metastasis with you and what signs to look for and they will resist. They will further resist if you ask for a scan to check for metastasis. Actually, they should not prescribe Aromatase Inhibitors, chemo or anything without knowing the whole picture of whether of not your breast cancer has metastasized. And 30% of metastases occur without lymph node involvement. Your “team” is acting as gatekeepers for Imaging just as your gynecologist doesn’t want to order an MRI for breast cancer detection. Mammography is very late and poor compared to MRI and women doctors would never settle for exclusive reliance on mammography for themselves. I discovered these things during my own experience of DCIS. Please read my story at

http://mammogramsanddcis.blogspot.com (mammograms and dcis)

  • Post #5
  • Sat Jan 11, 2020
Hi, I'm Georgia A W.

This last post is so accurate for me, no lymph node involvement and no scans then 3 years later Stage 4 :( It broke my heart. I couldn’t understand what had happened, I was so numb. I had done all the right things that the drs said to do, but they had not. I have learned so much since then. I believe the recommended treatments and tests were developed either in whole or at least in part with the insurance companies. I know one day they will answer for all the lives they have cost. But in the meantime there are a lot of us out here suffering, stand up for your self, educate your self, I highly recommend a number of the breast cancer private facebook groups. It is overwhelming but you are your best and sometimes only advocate.

  • Post #6
  • Mon Jan 13, 2020
Hi, I'm Joi B.

I’m just curious who your care team and Doctors are! Are either of you patients of Dr. Carter at the Conyers Cancer Center? I am livid at reading this information! I haven’t even begun hormone blocking therapy just yet but he is always bringing it up at my appointments and now I am getting Leary of this thread.

  • Post #7
  • Thu Jan 16, 2020
Hi, I'm Joi B.

And what about insurance? They told me that most insurance companies will NOT cover scans unless you are late stage disease so unless you come in with back pain or chronic pain of some sort you don’t get a scan! Loaded with chemicals and are very toxic to a generally healthy person.

  • Post #8
  • Thu Jan 16, 2020
Hi, I'm Joi B.

My questions are to post 5 and post 6. Y’all have me just terrified.

  • Post #9
  • Fri Jan 17, 2020

People need to b more responsible in their post. My care team at Lacks Grand Rapids means everything to us. Never felt that insurance was driving my care.

  • Post #10
  • Sat Jan 18, 2020

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