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About this group

A group for those with Pancreatic cancer.


  • Public, Open Access
  • All Journey Phases; Pancreatic Cancer
  • Pancreatic Cancer

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Hi, I'm Susan D
MEN's Multiple Endocrine Neoplasia It causes (benign or cancerous) tumors to develop on the endocrine glands, usually very slow growing. I was just wondering what sent you into the oncologist fo...
  • Fri Jan 14, 2022 ·
Hi, I'm Betti
Some chemo meds can alter the taste of things. I was told to use plastic utensils rather than metal and that helped me.
  • Fri Dec 31, 2021 · Like1
Hi, I'm Thomas401
Sorry, I just noted this may be the wrong discussion to post an introduction. I am still learning the system--how do I delete?
  • Wed Oct 20, 2021 · Like5
I have completed 4 treatments of my"cocktail", and I know what you are feeling. I have to wear a pump for 48 hrs too, but its not too bad. The first night of treatment was usually the worst, only b...
  • Sun Jan 14, 2018 · Like2
Hi, I'm ssheldo
My tumor is in the head of the pancreas and is too large to be removed. At this time it is stable but I would appreciate ANY info on similar instances or on treatment, studies, trials, etc. I hav...
  • Sat Nov 4, 2017 · Like2
Hi, I'm Maryanne W.
Diagnosed 12/2021 and immediately put on Fulfurinox. My tumor is in the tail of the pancreas and I have a tumor in my liver. Has anyone heard of success removing a tumor located in the tail (assu...
  • Wed Jan 19, 2022 · Like3
Updated Mar 22, 2010
The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.