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Newly diagnosed


I was diagnosed with b-cell marginal zone lymphoma in October 2016. I am presently in a watch and wait. The only symptom I have is fatigue and bone and muscle aches. My WBC is at 19. I’ve had one CT scan which all was normal. I guess I just want to hear about what am I watching and what am I waiting for.

  • Post #1
  • Sat Apr 29, 2017
Hi, I'm Pipgarden

Waiting and watching has to be very hard for you. I guess just try to be as healthy as you can. Prayers!

  • Post #2
  • Wed May 10, 2017
Hi, I'm Stefaan V.

Just diagnosed 6 weeks ago. Are you still watching and waiting or did you get treatment yet? Thanks.

  • Post #3
  • Thu Feb 21, 2019

I’ve been in remission for almost 5 years now after follicular NHL which transformed into Diffuse Large B-Cell. Went thru radiation and chemo. I came upon a book called Radical Remission by a PhD author who documented cases that went into remission where the initial diagnosis was grim. Worth the read – author outlines 9 “practices” which almost all individuals adhered to. Some are common sense type things and others maybe not so much.

  • Post #4
  • Mon Apr 8, 2019

Just diagnosed 3 weeks ago with NHL. First oncologist appointment is today. No idea what to expect. Kind of in an information overload right now. Scared right now.

  • Post #5
  • Fri Nov 8, 2019
Hi, I'm Babs

There doesn’t seem to be very many current posts in this group so I hope that others may join and encourage us newbies. DX on 10/4/19, and I also felt shell shocked. Diffused Large B cell Lymphoma, stage 4.
I’ll have my 3rd R-CHOP on Friday 12/6. The Staff are very patient and intelligent. They know what they are doing and will talk you through each step of any test or injection and about anything else that you may ask.

  • Post #6
  • Tue Dec 3, 2019

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