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Newly diagnosed


I was diagnosed with b-cell marginal zone lymphoma in October 2016. I am presently in a watch and wait. The only symptom I have is fatigue and bone and muscle aches. My WBC is at 19. I’ve had one CT scan which all was normal. I guess I just want to hear about what am I watching and what am I waiting for.

  • Post #1
  • Sat Apr 29, 2017
Hi, I'm Pipgarden

Waiting and watching has to be very hard for you. I guess just try to be as healthy as you can. Prayers!

  • Post #2
  • Wed May 10, 2017
Hi, I'm Stefaan V.

Just diagnosed 6 weeks ago. Are you still watching and waiting or did you get treatment yet? Thanks.

  • Post #3
  • Thu Feb 21, 2019

I’ve been in remission for almost 5 years now after follicular NHL which transformed into Diffuse Large B-Cell. Went thru radiation and chemo. I came upon a book called Radical Remission by a PhD author who documented cases that went into remission where the initial diagnosis was grim. Worth the read – author outlines 9 “practices” which almost all individuals adhered to. Some are common sense type things and others maybe not so much.

  • Post #4
  • Mon Apr 8, 2019

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