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  • Public, Open Access
  • All Journey Phases; Myelodysplastic Syndrome
  • Myelodysplastic Syndrome Support Group

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Hi, I'm Alex W.
I was diagnosed with megaloblastic anemia in 6/17 and after bone marrow biopsy with MDS in 12/17. I do not have del5q. I've had weekly shots of 60,000 units Procrit for 18 months which kept my RBC ...
  • Sun Jul 28, 2019 · Like1
I'm JoMac53, and I'm a survivor of Myelodysplastic Syndrome
Hello. Is this an active message board? My name is Jo and I have MDS-EB1. Going for eval by Rutgers Cancer Institute of New Jersey (RCINJ) transplant team at Robert Wood Johnson (RWJ) New Brunswick...
  • Thu Apr 12, 2018 ·
I have had MDS for 1.5 years. I have yet to locate an MDS support group in Georgia. Yes I know that there are some national groups and some web groups. I am exploring the possibility of orga...
  • Sun Feb 7, 2016 · Like1


Hi, I'm LARRY A H.
Bruce, please forgive the tardy response. I'm not sure which numbers you mean. My white blood cell count has been around 17,000 for the last couple of months. I feel fine. No complaints. When ...
  • Mon Oct 21, 2019 · Like1
Hi, I'm Barry P H.
Now that your results showed "remission", how did this affect your schedule of vidaza? Did you get to go longer than 4 weeks before you had to begin your 11th dose?
  • Tue Jul 26, 2016 · Like2


Hi, I'm Clifford P.
Toady I had my second blood work since my first Vidaza treatment. Platelet count was up, RBC was up, WBC down a little. I'm happy with the results.
  • Mon Mar 20, 2017 · Like4
Created Nov 28, 2012
We found this useful when talking with the doctor.