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Need info on small cell lung cancer.

Hi, I'm danswife

My husband was diagnosed with small cell lung cancer back in Nov. 2018. Had his first chemo first week of December 2018. Started internal bleeding & had to go in for transfusions of platelets and blood. Hoping to finally get chemo Monday, but no guarantee. He has been having problems with phlegm n his upper chest. His has a nebulizer, but still tries to choke this out. Any ideas?

  • Post #1
  • Sat Jan 26, 2019
Hi, I'm Sylvia L H.

I also have trouble with phlegm. I take Mucinex 600mg (over the counter) twice a day, run a large room humidifier during the day and a bedside humidifier at night. These measures, along with LOTS of water have helped me move my mucous out. I am 13 months post right lobectomy, and subsequent chemo and radiation for non-small cell .
(stage 3). now into a year of Imfinzi (immunotherapy) and scans are clear. I hope these easy measures help with the phlegm! Sylvia H

  • Post #2
  • Sun Jan 27, 2019

Sylvia, how did you “discover” your Stage 3 lung cancer? Symptoms—if you realized any? And how was your overall surgery experience? Was it robotic? And too, danswife, how was his lung cancer “discovered”? any surgery? How was his care overall? I am writing a book called Naked and Freezing trying to address patient concerns and ways we patients can have better care, experiences, ask more helpful questions and get more in-depth education on-going. Thank you for any help.

  • Post #3
  • Sat Feb 2, 2019
Hi, I'm Sylvia L H.

To the author of Naked and Freezing (love the title), I went to ER to check out some chest pain ( I have a coronary stent) and the mass was found on chest x-ray. That led to CT scan, and PET scan. Surgery was video-assisted thoracoscopic rt upper lobe resection. Being a retired nurse who spent time in ORs and recovery rooms, I had good knowledge of what to expect. I will say that the doctor and staff would generalize how long post-op symptoms would last, such as the statement " avoid bending over for the first few weeks to avoid increased pressure in chest cavity". Well, the feeling of my lungs slamming into my airway when leaning over lasted 8-9 months. But realistically, every patient is different and they can’t be that specific. But that was frustrating to me. Oh, back to symptoms, I had none, am a non-smoker, but heavy 2nd hand smoke from smoking parents. Of all the physicians I have encountered, the most informative was the radiation oncologist. He showed my ct pictures, graphs as to how he would target the radiation, etc. Very helpful. I think as patients we need to be proactive in research on line and ask as many questions as we can. The doctors will only tell you what they think you can handle. I hope this has been helpful. Sylvia H

  • Post #4
  • Sun Feb 3, 2019

Thanks Silvia. Having no first-hand medical knowledge whatsoever I was at the “mercy” (and I use that term loosely because there really wasn’t any mercy) of the surgeon and his staff. Basically their help was non-existent. Horrible, callous care. I tried to ask as many questions as I could imagine—but really not many—and the surgeon never offered any answers nor really tried to help. I received ridiculous medical care resulting in medical trauma and PTSD—hence my book. And I found that there aren’t avenues for patient help afterwards—patient advocacy, hospital departments, etc., etc., are all geared towards staving off lawsuits not, alas, helping heal the patient. So sad.

  • Post #5
  • Sat Feb 9, 2019
Hi, I'm Neal B.

Check the below article on the WSJ last week in terms of survivor support.
You’ve Survived Cancer. What Comes Next?
As more patients are treated successfully, doctors and researchers are focusing more on helping people navigate the difficult, often lonely years after treatment.
Marissa Vickers, 26, underwent cancer treatment starting at age 18. She was told she might have fertility issues, but she gave birth to twin sons in July. MAURA FRIEDMAN FOR THE WALL STREET JOURNAL
By Laura Landro
Sept. 15, 2019 10:07 pm ET

  • Post #6
  • Tue Sep 17, 2019

Thank you for the article. “Surviving” cancer can be a stumbling block as far as your mindset. You have been told you are a survivor but aren’t we all? Each one of us has had hurdles, horror, and worse to overcome. I say it’s a disease and you’re just living your life. Try not to dwell on the return possibility. If cancer does return THEN deal with it—don’t anticipate it will. You cheat yourself that way. Why I personally do not like the “survivor” term.

  • Post #7
  • Sat Sep 21, 2019

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