Leukemia & Lymphoma Society
Updated
Oct 21, 2010, filed in
About: The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services.Location: national
Organization: Leukemia & Lymphoma Society
Phone: (800) 955-4572
Email: info@lls.com
type: supportive services
tags: financial assistance, support group, helpline, spanish, insurance copay
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Paulette O.
I was diagnosed with Waldenstroms, which is a Non-hodgkins Lymphoma, and have spent several hundred hours doing research on this rare disease. I would like to connect with all other Waldsenstrom sufferers.
Andree J M.
I have Waldenstroms also and was diagnosed in 2007. My IGM has been stable at around 2700 but my beta2 has been 5 or over. The Docs can’t really explain what that means. I also have multiple enlarging lymph nodes, which is not considered significant, unless they cause problems.
I have not had any treatment other than IV iron for occasional anemia.
I am 77 years old and live in Knoxville, TN.
Angela M.
Who is your doctor in Knoxville? My father has Waldenstroms. Was diagnosed almost 8 years ago. Have complications now. Believed to be Bing Nell Syndrome. His oncologist is not the easiest to work with. Want to get a second opinion. Thanks!