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Just Diagnosed

Hi, I'm Kimberly S V.

Just beginning this and overwhelmed. Confused. Family is very supportive, but I still feel so alone. I don’t understand most of what the doctors are saying and just feel lost. Need others to talk to that know what I am going through.

  • Post #1
  • Thu May 23, 2019
Hi, I'm Betti

Check and see if your clinic has a nurse navigator. They will help you sort through things and be with you during your appointment to act as a 2nd pair of ears. My Surgeon invited my navigator to be with me during surgery to observe.

  • Post #2
  • Thu May 23, 2019
Hi, I'm Kimberly S V.

Thank you. I have one that checks with me once or twice a week, but I’m never sure what to even ask about. Tomorrow, my dr. and I should be discussing treatment plan, but I don’t know what I should be asking him about any of it. Any suggestions?

  • Post #3
  • Thu May 23, 2019
Hi, I'm Betti

See if your navigator can be at your appointment. Perhaps you 2 can meet up before your appointment and she can give you some ideas of what should be asked. I know at least twice my gal asked questions for me that I hadn’t thought of.

  • Post #4
  • Thu May 23, 2019
Hi, I'm Kimberly S V.

Thank you so much. I will ask her.

  • Post #5
  • Thu May 23, 2019
Breast Cancer Fighter & Survivor

I can’t tell you what to ask, even going through it myself I felt the same way. Alone. But I wanted to tell you, if you need to chat or ask questions that I might be able to answer feel free to add me on Facebook.
I may not have the answers, but I am always up for a chat, I found chatting with other fighter/survivors comforting as at least they had some clue to what I was feeling and going though. Every person’s experience is different, whether it be treatment, medicines, type of breast cancer, etc.
facebook.com/rhiannon.rowland.9

  • Post #6
  • Fri May 24, 2019

I went through a WHOLE lot of unnecessary trouble with mastectomy and reconstruction following annual mammograms, etc., because I was misled to believe in mammography. Our health care system keeps secret the use of the much better tool of contrast MRI for breast cancer screening. Now I insist on it. I wrote this whole bad experience into a story posted at

http://mammogramsanddcis.blogspot.com (mammograms and dcis)

Reading my story could save your or a loved one’s life. There is a lot that we are not told, because our system protects the insurance industry which doesn’t want to pay for it.

  • Post #7
  • Sat May 25, 2019
Hi, I'm Betti

It is my understanding that a contrast MRI is not a screening tool to replace mammography. Most if not all insurance companies won’t pay for one unless there is a reason to do so. My Oncologist ordered one to determine the size of the 2 areas they saw on my mammogram and U/S.

  • Post #8
  • Sat May 25, 2019
Hi, I'm Kimberly S V.

I’ve had a MRI, mammogram, ultrasound, biopsy and bloodwork. I’ve been told I have stage 2, triple negative, metaplastic breast cancer. I’m supposed to start chemo in two weeks. I’m overwhelmed and scared.

  • Post #9
  • Sat May 25, 2019
Hi, I'm Kimberly S V.

I start chemo in 1 week. I’m having moments of calm and moments of freaking out. I’m not looking forward to the side effects. I’m not looking forward to the hair loss. I’m not prepared for the emotional shock it’s going to bring. Does anyone have suggestions that can help me prepare for this mentally and emotionally?

  • Post #10
  • Wed Jun 5, 2019

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