Thank you. I have one that checks with me once or twice a week, but I’m never sure what to even ask about. Tomorrow, my dr. and I should be discussing treatment plan, but I don’t know what I should be asking him about any of it. Any suggestions?
I can’t tell you what to ask, even going through it myself I felt the same way. Alone. But I wanted to tell you, if you need to chat or ask questions that I might be able to answer feel free to add me on Facebook.
I may not have the answers, but I am always up for a chat, I found chatting with other fighter/survivors comforting as at least they had some clue to what I was feeling and going though. Every person’s experience is different, whether it be treatment, medicines, type of breast cancer, etc.
I went through a WHOLE lot of unnecessary trouble with mastectomy and reconstruction following annual mammograms, etc., because I was misled to believe in mammography. Our health care system keeps secret the use of the much better tool of contrast MRI for breast cancer screening. Now I insist on it. I wrote this whole bad experience into a story posted at
http://mammogramsanddcis.blogspot.com (mammograms and dcis)
Reading my story could save your or a loved one’s life. There is a lot that we are not told, because our system protects the insurance industry which doesn’t want to pay for it.
It is my understanding that a contrast MRI is not a screening tool to replace mammography. Most if not all insurance companies won’t pay for one unless there is a reason to do so. My Oncologist ordered one to determine the size of the 2 areas they saw on my mammogram and U/S.
I start chemo in 1 week. I’m having moments of calm and moments of freaking out. I’m not looking forward to the side effects. I’m not looking forward to the hair loss. I’m not prepared for the emotional shock it’s going to bring. Does anyone have suggestions that can help me prepare for this mentally and emotionally?