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Myelodysplastic Syndrome Discussions

Latest Posts to Myelodysplastic Syndrome Discussions

Tamoxifen treatment for breast cancer

In group: Patient Empowerment
Wendy
Wendy
Hi, I'm Wendy
Wendy
#35 Thank you for the reply. The last month and a half has been a whirlwind. It took a month for the palpitations to fully subside on their own. Since I am premenopausal (51), my only option by my ...
37
  • about 19 hours ago · Like3

chemo portal

Betti
Betti
Hi, I'm Betti
Betti
Power ports shouldn't move as they are in a vein with one end emptying into the heart and the other in the jugular. I've had mine for almost 6 years (in my chest) and it has never moved.
11
  • Sat Jan 19, 2019 · Like1

Body core temperature rises during sleep

In group: Patient Empowerment
Potter
Potter
Hi, I'm Potter
Potter
I have had very painful neuropathy in feet and hands And gained alot of weight as no hormones following Ovarian Cancer And surgery. Alsoback to bk hernia surgeries Also cognitive impairment an...
7
  • Sat Jan 19, 2019 · Like2

Dealing with denied Insurance claims

Karen M.
Karen M.
I'm Karen M., and I'm a survivor of Small Cell Lung Cancer
Karen M.
I have been denied twice for a pet scan from my oncologist. The insurance company claim I don’t have enough of the factors or criteria for this. So the dr ordered a Mri and a cat scan. I’m not sur...
4
  • Wed Jan 16, 2019 · Like1

Rash and itching from getting Erbitux

In group: Patient Empowerment
Richard P
Richard P
Hi, I'm Richard P
Richard P
I get the same skin rash/itching when I get a shot for anemia. Aranesp. Some times I go a month without needing it. But it always comes back when I get the shot.
8
  • Tue Jan 15, 2019 · Like1

Memory issues

In group: Are you concerned about memory or thinking problems after cancer treatment?
Starla
Starla
Hi, I'm Starla
Starla
I'm sorry to say that I still have cognitive impairment from chemo and its been 7 yrs. Like you, Hmoorepa I had to quit my job because I couldn't remember what to do or retain anything and I worked...
5
  • Mon Jan 14, 2019 ·

Mesothelioma

Betti
Betti
Hi, I'm Betti
Betti
Does your treatment center have support groups? Mine has several for various types of cancer. Take care of yourself, Betti
2
  • Mon Jan 14, 2019 ·

Monoclonal gramapathy of undetermined significance

In group: Patient Empowerment
Pat
Pat
Hi, I'm Pat
Pat
Thank you. Sorry after reading the post I realized auto spell check made an error. I apologize. Don’t know how to correct error. Anyway I am hanging in there. I am blessed to have wonderful friends...
27
  • Sun Jan 13, 2019 · Like4

Looking for answers

In group: Patient Empowerment
Hmoorepa
Hmoorepa
Hi, I'm Hmoorepa
Hmoorepa
I hope you had a blessed Christmas. You may want to ask your dr about prescribing either amitriptyline, trazodone ar remeron. These will help with difficulty sleeping, stress and weight loss. I’...
22
  • Sun Jan 13, 2019 · Like1

Vidaza

In group: Patient Empowerment
LINDA R
LINDA R
Hi, I'm LINDA R
LINDA R
Please take a look at the website for the Aplastic Anemia & MDS International Foundation webpage for Community Connections, they have a Central Georgia Community Connection MDS Support Group https:...
6
  • Thu Jan 3, 2019 · Like2

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