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Myelodysplastic Syndrome Discussions

Latest Posts to Myelodysplastic Syndrome Discussions

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In group: Myelodysplastic Syndrome Support Group
Bruce Spaanstra
Bruce Spaanstra
Hi, I'm Bruce Spaanstra
Bruce Spaanstra
Hi Larry. I was diagnosed with MDS in June after taking about 8 months with low red, white and hemoglobin levels. My platelets are still in the lower normal level. In order to help you with an answ...
4
  • Sun Oct 13, 2019 · Like1

Menopause & Chemo/radiation

In group: Patient Empowerment
Peggy
Peggy
Hi, I'm Peggy
Peggy
Ditropan will lessen the hot flashes. I just can't stand the side effects of the ditropan .
11
  • Sun Oct 13, 2019 · Like1

Tough time

In group: Patient Empowerment
JohnDavid
JohnDavid
Hi, I'm JohnDavid
JohnDavid
Hi everyone. I haven’t been back here for a bit. I start Xofigo Friday. I’ll watch for swelling. I will also ask about Provenge. I know immunotherapy is on the table for me. I’m also glad to hear a...
18
  • Tue Oct 8, 2019 · Like1

Jakafi - Anyone taking it and what is their experience?

Betti
Betti
Hi, I'm Betti
Betti
It must be something new as I haven't heard of it.
2
  • Mon Oct 7, 2019 ·

New to keytruda

In group: Patient Empowerment
rgbanner
rgbanner
Hi, I'm rgbanner
rgbanner
I started clinical trials with Keytruda and another immuno drug. So far no side effects that I can detect. My first scan showed no growth in tumors in my lungs and liver. Mine are very small and ho...
18
  • Sun Oct 6, 2019 · Like3

Feeding Tube Issue

In group: Patient Empowerment
John K G.
John K G.
Hi, I'm John K G.
John K G.
I just hung mine on a necklace lanyard. Everyone has their own way in the end.
12
  • Sat Oct 5, 2019 ·

Disappointed

In group: Patient Empowerment
Betti
Betti
Hi, I'm Betti
Betti
I'm not sure what you mean by OCS, this site?
2
  • Sun Sep 29, 2019 ·

Liver and lung cancer

In group: Patient Empowerment
CYNTHIA S.
CYNTHIA S.
Hi, I'm CYNTHIA S.
CYNTHIA S.
I have to add about trust. I've posted this story before. I was in a car accident--a bad fender bender. The ER doc was sending me home. The X-ray I'd just had showed no broken bones, "nothing wrong...
9
  • Sun Sep 29, 2019 ·

Group support

In group: Using Navigating Care
Kathleen M.
Kathleen M.
Hi, I'm Kathleen M.
Kathleen M.
I too, have gone through a traumatic heartbreak of no support. After I went for my biopsy for breast cancer . I was waiting anxiously for the results and was calling everyday. For the first 3 days ...
6
  • Sun Sep 29, 2019 ·

oral cancer and the crazy phlegm?

In group: Patient Empowerment
Eagle Lake grandma
Eagle Lake grandma
I'm Eagle Lake grandma, and I'm a survivor of Stage 3c Endometrial Cancer
Eagle Lake grandma
I am almost 7 year stage 4 HPV + SCC Tonsil Cancer survivor and still have phlegm issues. Xylimelts and drinking hot liquids are the only things that loosen the phlegm for me.
14
  • Sun Sep 22, 2019 · Like2

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