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Myelodysplastic/ Myeloproliferative Neoplasms Discussions

Latest Posts to Myelodysplastic/ Myeloproliferative Neoplasms Discussions

Doxil - hair loss?

In group: Patient Empowerment
Christy M.
Christy M.
Hi, I'm Christy M.
Christy M.
Anyone have experience on Doxil? Did you lose your hair? I just started yesterday and really don’t know what to expect. My doctors say ‘some’ hair loss. According to the internet it’s ‘total’ hair ...
1
  • Sat Jul 13, 2019 ·

Tips for Nausea due to Radiation

In group: Patient Empowerment
Robert R G.
Robert R G.
Hi, I'm Robert R G.
Robert R G.
I used ginger. Got it from the Nut Man at the Saturday market at the Amphitheater. It’s dried and slightly sweet and was recommended by a nurse to me.
16
  • Sat Jul 13, 2019 · Like3

Recommend service provider for resolving iPhone issues

Betti
Betti
Hi, I'm Betti
Betti
I'm not sure what this has to do with this site?
2
  • Mon Jul 8, 2019 · Like1

Lymphodema

Betti
Betti
Hi, I'm Betti
Betti
My OT recommended a compression sleeve for use doing some things to prevent it. So far I haven't any problems. She also gave me exercises I could do at home once I was done with appointments with...
2
  • Sun Jun 30, 2019 ·

Low hemoglobin

Betti
Betti
Hi, I'm Betti
Betti
I was talking with a lady who was diagnosed less than a year ago with Ovarian Cancer. She had surgery and chemo. and was doing well she thought. When she started having back pain her Oncology nur...
2
  • Thu Jun 27, 2019 · Like1

NAUSEA -treat with BRACELET - like seasickness and morning sickness-

In group: Patient Empowerment
DragginFeet
DragginFeet
Hi, I'm DragginFeet
DragginFeet...
It worked for me: the anti-nausea seasickness bracelets available for your ocean cruises kept me from having to take any of the prescribed anti-nausea medicines. I wore two of them (one on each ...
1
  • Sun Jun 23, 2019 · Like1

Colon cancer

In group: Support for the Supporter
CYNTHIA S.
CYNTHIA S.
Hi, I'm CYNTHIA S.
CYNTHIA S.
Hi Jamie, First off, know we are here for you and your brother. You are NOT ALONE. Second, I would get a second opinion. No reason not to. Third, the drugs make a patient depressed it's not really ...
2
  • Sat Jun 22, 2019 ·

polycythemia vera

Jill F L.
Jill F L.
Hi, I'm Jill F L.
Jill F L.
My mother had pv for a couple years. She couldnot tolerate the hydroxyurea. It made her feel so sick. She would sit wrapped in a blanket and shake all day. She only had one phlebotomy. Her main pro...
2
  • Mon May 27, 2019 ·

Michelle ott

In group: Patient Empowerment
Michelle M O.
Michelle M O.
Hi, I'm Michelle M O.
Michelle M O.
I have osteoporosis and I did so zomeda about a year and I was scared that it would affect my kidney so my doctor change to another medication which it kind of gives me flu like symptoms after my s...
2
  • Sun May 5, 2019 · Like1

Osteoporosis and Zoledronic Acid (Reclast)

In group: Patient Empowerment
Alee
Alee
Hi, I'm Alee
Alee
I have an immune deficiency disorder that involves all sublclasses therefore requiring me to take Intravenous infusions of a very viscous substance every 3 weeks. The entire process from set-up to ...
21
  • Tue Apr 30, 2019 · Like1

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