Skip Navigation

Hairy Cell Leukemia Discussions

Latest Posts to Hairy Cell Leukemia Discussions

Hi, I'm Joanna Bayer
I've been 2 years post chemo and still having trouble with my nails. Like the others, I did have pain with my nail beds, and lost most nails during chemo. Since then, I've slowly been growing them ...
4
  • about 2 hours ago · Like2
Hi, I'm CYNTHIA S.
Hi Angie, Yes it sounds like a nerve(s) is onvolved. Do you have burning in that area? As well as pain? Usually burning is a sure sign of a nerve being involved. After my lung surgery, my entire le...
2
  • Sat Nov 9, 2019 · Like1
Hi, I'm CarDell M.
I am in my fourth month of Vidaza (Chemo) treatments. So far a very small improvement, but the Dr. said to stay patient. I am on oxygen 24/7 and my HCT is now 24.9. My HGB is 8.5. I understand ...
31
  • Sat Nov 9, 2019 · Like1
Hi, I'm CHRIS A C.
I had stage 3 metastatic squamous cell carcinoma with an unknown primary. I was treated Surgry with 35 weeks of radiation and no chemo. The bloody throat did not go away until about four months a...
8
  • Sun Nov 3, 2019 ·
Hi, I'm Robert L G.
I am post #8 update. 2 months since my last post to this discussion. Completed my treatment 9 (10 is in a few days). Have noticed sleep issues and wondering if anyone else has as well? Tired and sl...
19
  • Mon Oct 28, 2019 · Like4
Regarding post #9, Empower yourself. Read. Read. Read. Side effects were mentioned to me however, I research everything. They gave me a patient portal. In the patient portal I saw a graduation cap ...
13
  • Mon Oct 21, 2019 · Like1
Hi, I'm JohnDavid
Hi everyone. I haven’t been back here for a bit. I start Xofigo Friday. I’ll watch for swelling. I will also ask about Provenge. I know immunotherapy is on the table for me. I’m also glad to hear a...
18
  • Tue Oct 8, 2019 · Like1
Hi, I'm Betti
It must be something new as I haven't heard of it.
2
  • Mon Oct 7, 2019 ·
Hi, I'm John K G.
I just hung mine on a necklace lanyard. Everyone has their own way in the end.
12
  • Sat Oct 5, 2019 · Like1
Hi, I'm Betti
I'm not sure what you mean by OCS, this site?
2
  • Sun Sep 29, 2019 · Like1