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Blood Disorder Discussions

Latest Posts to Blood Disorder Discussions

Hi, I'm Marc C C.
Recently rushed to Aria - Torresdale with a hemoglobin of 3.0 and falling hospitalized in excess of 30 days and rec'd 25 give or take units of blood. Upon intervening in my case Dr. Chasky determin...
7
  • Tue Sep 22, 2020 · Like1
Hi, I'm Karrie L.
Is there anyone here who has to come to a cancer center to recieve IV infusions for severe arthritis? Starting simponi infusions tuesday. Scared to death of needles but excited to get the iv and ev...
1
  • Fri Jul 10, 2020 ·
Hi, I'm Brian A.
I need Someone who understands this blood disorder. I have been diagnosed for 5 years, hospitalized 4 times, and still the Hospital refused to acknowledge this disorder and treat it. I am learni...
1
  • Wed Jun 3, 2020 ·
Hi, I'm CASIMER V K.
A male friend of mine in his 60s had CMML and underwent a bone marrow transplant 5 years ago. He was still doing well 2 weeks ago when we spent time together in FL. He had no choice: bone marrow t...
2
  • Sat Mar 7, 2020 ·
Hi, I'm bob holliday
Americans trust their family doctor. But, doctors are letting us down in the case of hereditary hemochromatosis (H.H.), which causes retention of too much iron and can be fatal. Co...
1
  • Sat Dec 21, 2019 ·
Hi, I'm Gloria A D.
I was just diagnosed with Hemochromatosis. Apparently it was in my blood work last year but wasn’t caught til another Dr. seen in my past lab work that something was wrong and ordered more labs.
4
  • Mon Sep 30, 2019 · Like1
Hi, I'm ANN M A.
Hello, I have ET also. And have been on hydroxyurea for 20 years. And taking the low dose aspirin. Thankfully the meds keep the platelet count at a reasonable rate. I take my medication at nig...
6
  • Thu Sep 12, 2019 · Like1
Ian
Ian
Hi, I'm Ian
Ian
I was timed out so I couldn't finish my post. I receive the Gamma Globulin Infusions for a rare form of Myasthenia Gravis.
22
  • Wed Aug 28, 2019 ·
Hi, I'm Charlotte C.
I am 76 diagnosed with polycythemia vera with JAK2 10 mo ago...Taking Hydroxyurea to surpress my bone marrow from making to many mutant cells...working so far...I joined facebook polycythemia vera...
3
  • Sat Mar 16, 2019 · Like6
I took Gabapentin for nerve pain for one year after my 2007 mastectomy. It was a godsend to me. A few years later I suffered from bilateral brachial neuritis, again suffering the excruciating nerve...
43
  • Sun Feb 3, 2019 · Like7

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