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essential thrombocythemia

Hi, I'm Sharon L P.

Is essential thrombocythemia cancer

  • Post #1
  • Sat Jan 16, 2016
Hi, I'm Julia C.

Me too the dr says it is in the catagory of cancer. But he is not sure why.

  • Post #2
  • Tue Apr 4, 2017
Hi, I'm Grinwhicket

I had the blood test for Jak2 gene mutation which is why I have ET. I is a cancer technically because the mutation causes there to be no brakes on blood cell creation. Uncontrolled growth = cancer by definition. I have been on hydroxyurea for 2.5 years now and my leukocytes have finally dropped as well as platelets. STRESS has an effect! After removing myself from a high-stress situation, the white cells dropped, but before that we couldn’t get them to budge. EXERCISE has a beneficial effect on both stress levels AND the fatigue that comes with MPNs.

  • Post #3
  • Thu Apr 13, 2017
Hi, I'm Grinwhicket

Ask your doctors to study up on MPNs. Join a community: of course Facebook has one. (lol) Gene tests combined with bone marrow biopsies (BMB) can determine which kind of MPN you have, and there are very few experts in this form of cancer in the USA. Patients with ET are only 4 per half a million! Bone marrow biopsy will tell a lot of course, and I need one every 5 years unless I have an “event”, aka stroke or new cancer. I refused to start chemo until the doctor proved why it was needed. Gene tests proved it. I am doing well under daily hydroxyurea, as it has reduced night sweats a lot and it seems to be well tolerated. I also take a baby aspirin every night, an essential medication in handling ET. Hydroxyurea also puffs up deformed platelets so they carry oxygen better. Aspirin is to help prevent stroke. Good luck to all. Hope this info helped!

  • Post #4
  • Thu Apr 13, 2017

I have ET and take hydroxyurea. I get very tired/fatigued during the day and have to take a nap. Is the fatigue due to the drug or the disease? Thanks for any help.

  • Post #5
  • Sat Apr 6, 2019
Hi, I'm ANN M A.

Hello, I have ET also. And have been on hydroxyurea for 20 years. And taking the low dose aspirin. Thankfully the meds keep the platelet count at a reasonable rate. I take my medication at night to reduce fatigue.

  • Post #6
  • Thu Sep 12, 2019

I have just been diagnosed with ET and am debating whether to take hydroxyurea since I am 75 and and am not much bothered by the ET. I don’t want to live with side effects from the treatment that are worse than the disease. Appreciate any insights from people on side effects of hydroxyurea.

  • Post #7
  • Mon Jul 4, 2022

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