Autoimmune Hemolytic Anemia
I am not familiar with any one else with this rare blood disorder as this diagnosis is new to me and I finally have a name for my symptoms. I am a 53 year old female, I have hypothyroidism and have been now diagnosed with Autoimmune Hemolytic Anemia or AIHA.
I have had 4 episodes of Autoimmune Hemolytic Anemia at different times of each year over the last 4 years where my hemoglobin drops and goes low. I am not able to pin point the reason why this happens when it does, I can tell when I am anemic based on my symptoms and I am very active with exercise and raring right.
The most current episode was the worst one. It happened about 4 weeks ago where my hemoglobin plummeted to 6.6 and I had to have a stat blood transfusion that day. My hemoglobin numbers over the last 3 weeks went from 9.3 to 8.5 to 8.2 while being on steroids. I am hoping that the steroids will eventually work and boost my hemoglobin. If not, the next step will be IV medications.
I’m not sure if you will find this helpful but I was happy to see someone else with this diagnosis. I haven’t learned anything specific about this rare blood disorder other than it is autoimmune and there is no way to treat is proactively. You have to treat the symptoms when you have an episode.
I have AIHA aka Cold Agglutinin Disease ~ I’ve had blood transfusions over the yrs & more recently Rituxan. I’m allergic to high doses of steroids therefore I don’t take them. I’ve been living w/this since 2005, best advice, don’t put anything cold into your body (ice water/etc) keep warm, stay out of cold weather & if you go out dressed layered & bundled!